We Leveled Up in 2026!
For the third consecutive year, Shadow Jumpers and the United Porphyrias Association brought the photosensitive community together for another unforgettable long weekend of ALL FUN and NO SUN.
Spin Away the Sun Recap
Our 6th annual fundraiser united riders across New Jersey, Boston, and Los Angeles for an unforgettable coast to coast weekend that raised an incredible amount of money for photosensitive families.
Happy Birthday to Us
What started as a small idea to make life safer, more inclusive, and more fun for kids living with EPP has grown into a full photosensitive wide community that proves limits don’t define possibility.