Shadow Jumpers is a 501c3 nonprofit that creates meaningful experiences and a sense of community to families in North America suffering from rare photosensitive conditions.
Since 2017, Shadow Jumpers has assisted families in renovating their homes to be more UV safe, organized sun proof and all expenses paid vacations, provide financial relief for related medical bills and created a ‘pay it forward’ protective clothing drive.
In May of 2024 Shadow Jumpers co-created SUN ESCAPE, a yearly camp that features a variety of activities purposely sun safe indoors or set in the late evening. Those activities include archery, horseback riding, zip lining, fishing, bowling, an indoor super dome, a petting zoo, arts & crafts and, in 2025, a water park – making it a one of kind safe experience.
“When Shadow Jumpers came into our lives, we were struggling parents filled with uncertainty and anxiety about our daughter’s health and EPP. We needed this organization more than they’ll ever know. From giving our daughter a new basement and bedroom to escape the sun on the sunniest days to our incredible weekend with the San Jose Sharks, They made our entire family feel special and we cannot thank them enough.
We are extremely grateful to be part of their story.”
The Kypreos Family, Wisconsin.
Unique in our Approach
Shadow Jumpers was founded by patients, caregivers and medical professionals specifically from the rare photosensitive community. Our mission isn’t to find a cure for these conditions but to be the leading voice in living with these unique circumstances regarding the sun and harmful light.
At Shadow Jumpers, everyone on our team either has to have a photosensitive condition themselves or be personally connected to someone who does. That includes being a parent, spouse or relative to a photosensitive patient or working in a related medical field.
Our goal is to connect with the youngest generation of our community in ways others may not be able to because we have experienced these hardships first hand.
Our Board of Directors
Shadow Jumpers’ board consists only of people with a photosensitive condition, a parent or family member to someone with these conditions, and a medical professional working specifically in this space.
One of our 7 board seats is always held by a youth ambassador and all of our team members are volunteers.
Learn more about our board of directors and leadership HERE
