"I was diagnosed with EPP at the age of two along with my brother who was eighteen. I am grateful to be a part of Shadow Jumpers, an organization focused on supporting the youngest members of our community and their families. "

"As a clinical researcher, I'm very familiar with the wonderful work Shadow Jumpers has done for our families through the years. Seeing this impact makes me so excited to be part of this amazing organization in supporting families through providing meaningful experiences"

"My sister and I were diagnosed with EPP at an early age, and we were impacted by our parents' commitment to having as normal an upbringing as possible. I quickly realized that with some creativity the sun was an easy obstacle to work around in my life."

"I am a parent of a child with EPP. I am so excited to be a member of the Shadow Jumpers board because I know firsthand how hard life with EPP can be for the whole family. I can’t wait to be able to help pay it forward to other families like ours. "

Youth Ambassador

"I was diagnosed with EPP at the age of 2 and a half and it’s been with me ever since. The shadow jumpers organization has provided my family and I so much. I am very excited to join this team and help families just like mine."

"I have two kids with EPP and I know how isolating and discouraging it can feel at times. I am blessed to have this opportunity to give back and can’t wait to help others have experiences they never thought possible!"

"EPP is a family affair – and our whole family has rallied around our son, Brady, since he was diagnosed with EPP in 2009. We’ve always tried to create a way for him to try anything he wants to do. I’m proud to support Shadow Jumpers and to offer a bit of joy to other shadow jumping kids around the world!"